Category: Personal

A black and white image of a young person in a wheelchair. Their head is resting on a wheelchair headreast. They have dark hair and a dark beard, and are wearing glasses. They are white, and they are wearing a black t-shirt with grey lettering, saying "PISS ON PITY"

Adaption = grief + pragmatism

For me, the hardest thing about living with progressive impairment rather than the static impairment I hoped I had is that shifting relationship with the ground. Just as I know what I can do, and what I can expect, this...

Living the Life I Want: The Freedom to Fail

This is part 2 of a blog exploring my “living the life you want” panel discussion at the annual Young People’s stream of the Muscular Dystrophy UK conference. I spoke alongside Lucy Watts and Fi Anderson, and discussed two issues...

Living the Life I Want – PA Management

I spoke at the Trailblazers Young People’s conference last Saturday (13th Oct), alongside two other excellent speakers – Lucy Watts and Fi Anderson. The topic was ‘living the life you want’ and making notes for my remarks made me realise...