Adaption = grief + pragmatism

For me, the hardest thing about living with progressive impairment rather than the static impairment I hoped I had is that shifting relationship with the ground. Just as I know what I can do, and what I can expect, this is thrown into relief by a new problem cropping up out of nowhere. I thoughtContinue reading “Adaption = grief + pragmatism”

Forced to crowdfund her independence: support Fi’s wheelchair fundraiser

Fi Anderson is fundraising for a wheelchair. To get one that meets her needs, she has to raise £14,125. She’s applied for countless grants, but will still need to fundraise a lot of the cost herself. If you can help by donating, please do so here: https://www.justgiving.com/crowdfunding/fisnewchairIf you can’t, consider sharing this. Note: I hateContinue reading “Forced to crowdfund her independence: support Fi’s wheelchair fundraiser”

Being disabled: I am the single use plastics crisis – and that’s okay

I could weep when I look at the mound of plastic I create each day, or week. The toll is ridiculous. What I have to remember is that this is what single use plastics are there for. This is because, like many other ill and disabled people, I rely on them for survival. Catheter: 7Continue reading “Being disabled: I am the single use plastics crisis – and that’s okay”

Living the Life I Want: The Freedom to Fail

This is part 2 of a blog exploring my “living the life you want” panel discussion at the annual Young People’s stream of the Muscular Dystrophy UK conference. I spoke alongside Lucy Watts and Fi Anderson, and discussed two issues at the conference, one was about managing PAs to maximise my ability to live theContinue reading “Living the Life I Want: The Freedom to Fail”

Living the Life I Want – PA Management

I spoke at the Trailblazers Young People’s conference last Saturday (13th Oct), alongside two other excellent speakers – Lucy Watts and Fi Anderson. The topic was ‘living the life you want’ and making notes for my remarks made me realise – in the past year, I’ve really gone from living a life that I didn’tContinue reading “Living the Life I Want – PA Management”