Disabled at Uni: 3. Before your course begins (and who’s there to help)

Last week, I wrote about Disabled Students’ Allowance and getting the right technology and support in place. This week, it’s more about setting up with the services the University offers, and how to give them what they need to help you. You may already be in contact with staff at the University if you hadContinue reading “Disabled at Uni: 3. Before your course begins (and who’s there to help)”

Disabled at Uni: 2. Disabled Students’ Allowance

Last week in this series on applying to study as a disabled person, I wrote on the application process and turning disability to your advantage, and this week I’m writing about Disabled Students Allowance. They fund select equipment and support grants. Disabled Students’ Allowance (or DSA) provides funding for support and equipment for disabled studentsContinue reading “Disabled at Uni: 2. Disabled Students’ Allowance”

Disabled at Uni: 1. Applying to study

Introducing the Disabled at Uni series This covers a number of aspects of the disabled student experience, serving as advice and guidance on studying as a disabled student, the support that’s out there, and how to access it. Applying to study Disabled Students’ Allowance Before your course begins (and who’s there to help) Accomodation, socialContinue reading “Disabled at Uni: 1. Applying to study”

Adaption = grief + pragmatism

For me, the hardest thing about living with progressive impairment rather than the static impairment I hoped I had is that shifting relationship with the ground. Just as I know what I can do, and what I can expect, this is thrown into relief by a new problem cropping up out of nowhere. I thoughtContinue reading “Adaption = grief + pragmatism”

Forced to crowdfund her independence: support Fi’s wheelchair fundraiser

Fi Anderson is fundraising for a wheelchair. To get one that meets her needs, she has to raise £14,125. She’s applied for countless grants, but will still need to fundraise a lot of the cost herself. If you can help by donating, please do so here: https://www.justgiving.com/crowdfunding/fisnewchairIf you can’t, consider sharing this. Note: I hateContinue reading “Forced to crowdfund her independence: support Fi’s wheelchair fundraiser”

Being disabled: I am the single use plastics crisis – and that’s okay

I could weep when I look at the mound of plastic I create each day, or week. The toll is ridiculous. What I have to remember is that this is what single use plastics are there for. This is because, like many other ill and disabled people, I rely on them for survival. Catheter: 7Continue reading “Being disabled: I am the single use plastics crisis – and that’s okay”

Living the Life I Want: The Freedom to Fail

This is part 2 of a blog exploring my “living the life you want” panel discussion at the annual Young People’s stream of the Muscular Dystrophy UK conference. I spoke alongside Lucy Watts and Fi Anderson, and discussed two issues at the conference, one was about managing PAs to maximise my ability to live theContinue reading “Living the Life I Want: The Freedom to Fail”

Living the Life I Want – PA Management

I spoke at the Trailblazers Young People’s conference last Saturday (13th Oct), alongside two other excellent speakers – Lucy Watts and Fi Anderson. The topic was ‘living the life you want’ and making notes for my remarks made me realise – in the past year, I’ve really gone from living a life that I didn’tContinue reading “Living the Life I Want – PA Management”

Adaptive Product Reviews – wheelchair edition (phone mount, drinking straw, coffee cup)

……….Excuse me, but what’s the mount attached to your wheelchair called? Another wheelchair user, stopping me in public I didn’t anticipate ever spending my time writing product reviews, but I’m very frequently asked about three things I use on a day-to-day basis. These are the Meru Flexzi 2 phone mount (wheelchair users often stop me whileContinue reading “Adaptive Product Reviews – wheelchair edition (phone mount, drinking straw, coffee cup)”

NOT DYING: A creative residency

This autumn I will be running a creative residency at a London theatre, including offering free performance workshops for disabled artists on the themes of DISABLED JOY and WE HAVE ALWAYS BEEN HERE Easy read version For several years I’ve been working on a poetry show exploring my journey through the trauma of illness toContinue reading “NOT DYING: A creative residency”