Forced to crowdfund her independence: support Fi’s wheelchair fundraiser

Fi Anderson is fundraising for a wheelchair. To get one that meets her needs, she has to raise £14,125. She’s applied for countless grants, but will still need to fundraise a lot of the cost herself. If you can help by donating, please do so here: https://www.justgiving.com/crowdfunding/fisnewchairIf you can’t, consider sharing this. Note: I hateContinue reading “Forced to crowdfund her independence: support Fi’s wheelchair fundraiser”

Living the Life I Want: The Freedom to Fail

This is part 2 of a blog exploring my “living the life you want” panel discussion at the annual Young People’s stream of the Muscular Dystrophy UK conference. I spoke alongside Lucy Watts and Fi Anderson, and discussed two issues at the conference, one was about managing PAs to maximise my ability to live theContinue reading “Living the Life I Want: The Freedom to Fail”

Living the Life I Want – PA Management

I spoke at the Trailblazers Young People’s conference last Saturday (13th Oct), alongside two other excellent speakers – Lucy Watts and Fi Anderson. The topic was ‘living the life you want’ and making notes for my remarks made me realise – in the past year, I’ve really gone from living a life that I didn’tContinue reading “Living the Life I Want – PA Management”

Adaptive Product Reviews – wheelchair edition (phone mount, drinking straw, coffee cup)

……….Excuse me, but what’s the mount attached to your wheelchair called? Another wheelchair user, stopping me in public I didn’t anticipate ever spending my time writing product reviews, but I’m very frequently asked about three things I use on a day-to-day basis. These are the Meru Flexzi 2 phone mount (wheelchair users often stop me whileContinue reading “Adaptive Product Reviews – wheelchair edition (phone mount, drinking straw, coffee cup)”

NOT DYING: A creative residency

This autumn I will be running a creative residency at a London theatre, including offering free performance workshops for disabled artists on the themes of DISABLED JOY and WE HAVE ALWAYS BEEN HERE Easy read version For several years I’ve been working on a poetry show exploring my journey through the trauma of illness toContinue reading “NOT DYING: A creative residency”

Three things I wish people knew about living with life-threatening impairment

One of the hardest things about living with life-threatening impairment is actually not dealing with my situation, but with peoples reactions to my situation. Here are three things I wish people knew about living with life-threatening impairment People constantly presume how I must feel, and then react to me based on that – when they’veContinue reading “Three things I wish people knew about living with life-threatening impairment”

Five great tips for using London buses in a wheelchair

Having lived in London for three years, I’ve taken a lot of buses. In that time, I’ve been sworn at by drivers, had a woman accuse me of trying to kill her baby, been shouted and sworn at by passengers, and been chased off a bus in tears – all for trying to assert my legalContinue reading “Five great tips for using London buses in a wheelchair”

How to respond when you’re asked about wheelchair access

When ostensibly ‘social justice’ or ‘left wing’ events don’t put access details on their websites, they’re functionally excluding disabled people – but how should you respond when asked about wheelchair access? When I have to email your space or event to ask you about wheelchair access, I’m already annoyed. I’m annoyed because you should beContinue reading “How to respond when you’re asked about wheelchair access”