COVID-19, disabled people, and the right to LIVE (independently)

COVID-19, disabled people, and the right to LIVE (independently) Coronavirus is ripping through care homes. It is killing thousands of people who are trapped in these institutions, often with no choice or control as to who provides their ‘care’, no way of protecting themselves, and who are left watching their friends die. Part of theContinue reading “COVID-19, disabled people, and the right to LIVE (independently)”

Adaptive Product Reviews: Personal hygiene (electric toothbrush, water flosser, beard trimmer)

When my impairment interfered with me brushing my teeth successfully I went in search of independent personal hygiene solutions that worked for me

Adaptive Product Reviews: Bed Edition (pregnancy pillow, slide sheets, grabber, cable ties)

……….How do you maximise your independence in bed, when you need help to turn, be positioned, and reach for things? A conversation with a friend with similar impairments In Carrie Aimes’s excellent blog on living with Ullrich Congenital Muscular Dystrophy she wrote about her experiences, and mentioned “I bought a satin bed sheet and wearContinue reading “Adaptive Product Reviews: Bed Edition (pregnancy pillow, slide sheets, grabber, cable ties)”

Adaptive Product Reviews: Dog Edition (Julius K9 harness with panniers, jogging lead, dog poo grabber)

…………How do other wheelchair users with limited upper body strength manage to walk your dogs independently? A discussion between a group of disabled people with pets My greyhound is the centre of my life. Getting him was a spontaneous decision that in many ways I probably shouldn’t have made, but I’m still deeply fond ofContinue reading “Adaptive Product Reviews: Dog Edition (Julius K9 harness with panniers, jogging lead, dog poo grabber)”

Adaptive Product Reviews: Wheelchair Edition (Salsa M2)

……….Wheelchair Services have offered my son a Salsa M electric wheelchair. How do you find this wheelchair, and what postural set-up do you use? The parent of a boy with muscular dystrophy asking on a forum for young disabled people I was given this wheelchair by wheelchair services, so I offered to write a comprehensiveContinue reading “Adaptive Product Reviews: Wheelchair Edition (Salsa M2)”

Forced to crowdfund her independence: support Fi’s wheelchair fundraiser

Fi Anderson is fundraising for a wheelchair. To get one that meets her needs, she has to raise £14,125. She’s applied for countless grants, but will still need to fundraise a lot of the cost herself. If you can help by donating, please do so here: https://www.justgiving.com/crowdfunding/fisnewchairIf you can’t, consider sharing this. Note: I hateContinue reading “Forced to crowdfund her independence: support Fi’s wheelchair fundraiser”

Living the Life I Want: The Freedom to Fail

This is part 2 of a blog exploring my “living the life you want” panel discussion at the annual Young People’s stream of the Muscular Dystrophy UK conference. I spoke alongside Lucy Watts and Fi Anderson, and discussed two issues at the conference, one was about managing PAs to maximise my ability to live theContinue reading “Living the Life I Want: The Freedom to Fail”

Living the Life I Want – PA Management

I spoke at the Trailblazers Young People’s conference last Saturday (13th Oct), alongside two other excellent speakers – Lucy Watts and Fi Anderson. The topic was ‘living the life you want’ and making notes for my remarks made me realise – in the past year, I’ve really gone from living a life that I didn’tContinue reading “Living the Life I Want – PA Management”