COVID-19, disabled people, and the right to LIVE (independently)

COVID-19, disabled people, and the right to LIVE (independently) Coronavirus is ripping through care homes. It is killing thousands of people who are trapped in these institutions, often with no choice or control as to who provides their ‘care’, no way of protecting themselves, and who are left watching their friends die. Part of theContinue reading “COVID-19, disabled people, and the right to LIVE (independently)”

Forced to crowdfund her independence: support Fi’s wheelchair fundraiser

Fi Anderson is fundraising for a wheelchair. To get one that meets her needs, she has to raise £14,125. She’s applied for countless grants, but will still need to fundraise a lot of the cost herself. If you can help by donating, please do so here: https://www.justgiving.com/crowdfunding/fisnewchairIf you can’t, consider sharing this. Note: I hateContinue reading “Forced to crowdfund her independence: support Fi’s wheelchair fundraiser”

Living the Life I Want: The Freedom to Fail

This is part 2 of a blog exploring my “living the life you want” panel discussion at the annual Young People’s stream of the Muscular Dystrophy UK conference. I spoke alongside Lucy Watts and Fi Anderson, and discussed two issues at the conference, one was about managing PAs to maximise my ability to live theContinue reading “Living the Life I Want: The Freedom to Fail”

Living the Life I Want – PA Management

I spoke at the Trailblazers Young People’s conference last Saturday (13th Oct), alongside two other excellent speakers – Lucy Watts and Fi Anderson. The topic was ‘living the life you want’ and making notes for my remarks made me realise – in the past year, I’ve really gone from living a life that I didn’tContinue reading “Living the Life I Want – PA Management”