Adaption = grief + pragmatism

For me, the hardest thing about living with progressive impairment rather than the static impairment I hoped I had is that shifting relationship with the ground. Just as I know what I can do, and what I can expect, this is thrown into relief by a new problem cropping up out of nowhere. I thoughtContinue reading “Adaption = grief + pragmatism”

Three things I wish people knew about living with life-threatening impairment

One of the hardest things about living with life-threatening impairment is actually not dealing with my situation, but with peoples reactions to my situation. Here are three things I wish people knew about living with life-threatening impairment People constantly presume how I must feel, and then react to me based on that – when they’veContinue reading “Three things I wish people knew about living with life-threatening impairment”